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Showing posts from July, 2018

Life Lately

It’s been a while, but there haven't been many blog-worthy happenings in our world. I could update with every milestone Eli meets or misses, every therapy he has, etc. but it’s really not that interesting, and this has become more about me and how I’m dealing with his diagnosis versus nonstop updates on his condition. Eli is actually doing great. He is behind on milestones, which we knew/expected, and he has different therapies (speech, physical, occupational) on a weekly basis, but when he’s out and about no one would ever know he was anything but a normal kid (unless they asked how old he is…I am still dreading the next time that happens). I think this makes some things easier and some harder. Of course, I feel lucky that he can ride in a normal car seat, be around other kids and their germs, wear clothes only a size or so smaller than average; and I’m so glad we don’t have to worry too much about spinal compression issues or sleep apnea and trying to make him sleep with a ...