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Showing posts from January, 2018

The D Word

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If you’ve read this blog with any regularity or seen my Facebook statuses at all, I’ve been vague about Eli’s primary problem. It’s not because I like to vaguebook, it’s mostly because we don’t have a confirmed diagnosis (and might never have one). If things end up better than we expect, I don’t want to spend years speaking with certainty about his issues and then have him turn out average when I commandeered a serious diagnosis for years, and have people think I was just being over-dramatic or making it up the whole time. But another reason for this is I am still struggling with denial, with hoping he WILL turn out “average” against all odds, with wondering how and why this happened to us. I see other parents who seem so well adjusted, and it makes me feel simultaneously jealous and guilty, like there is yet another thing wrong with me that makes me unable to look on the bright side 100% of the time. Or even 50% of the time. Anyway. Dwarfism. That’s what they think it is. I haven...