Helmet Rants...
It’s been a while, partially due to a vacation, a destination wedding, house hunting, and holiday prep, but also because I have some mixed feelings about the helmet and our craniosynostosis diagnosis and I’ve been trying to decide how to explain them without seeming insensitive. I doubt any of my family and friends reading this would be offended but if someone stumbles upon this who has received a craniosynostosis diagnosis, I can see where they might disagree with my feelings. First, the craniosynostosis diagnosis specifically. While there are some babies who have craniosynostosis as a symptom of a larger problem (Eli probably falls into this category, as would kids with things like Apert syndrome or Crouzon syndrome), most babies have this as an anomaly. They are 100% normal in every other way, and once they have the surgery to correct the fusion closure, they go on to lead completely normal lives. I’m in a lot of craniosynostosis support groups on Facebook, and while I understa...